Keywords
Cleft Lip, Cleft Palate, Counseling, Feeding Methods, Nursing, Infant Care
How to Cite
Orientación inicial, calidad de consejería y forma de alimentación en niños fsurados. (2019). Odontoestomatología, 15(21), 12-19. https://odon.edu.uy/ojs/index.php/ode/article/view/106
Abstract
The relevance of counseling is based on the fact that the diagnosis of any malformation in children represents a burden and disappointment to their parents. Extra support is required during this sensitive period, which is necessary for children to accept their condition. We describe the type of cleft, the initial orientation, and the quality and practice of nutrition counseling in cleft patients, using a cross-sectional study with non-random sampling among patients in dental service at the Guillermo Grant Benavente regional hospital, Concepción, Chile. We interviewed 36 parents, and 69% of them assessed the quality of information they received as very poor. Te information given to the parents, was frst provided by the midwives (28%), secondly by the pediatricians (22%), followed by neonatologists, pediatric surgeons (11% each one) and orthodontists (8%). Parents (91%) acknowledged they had received later counseling from orthodontists (11%). Only 13% were exclusively breastfed, while parents (98%) believe that breastfeeding is essential for their children. Parents (95%) are not bound to any parent’s organization of cleft children
References
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palate: experience of the Hospital for Rehabilitation of Craniofacial Anomalies/USP (HRAC/USP) – Part 1: overall aspects. J Appl Oral Sci.[en línea] 2012;20(1):9-15.
[fecha de acceso: 30 de octubre de 2012] Disponible en: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1678- 77552012000100003 -&lng=en&nrm=iso&tlng=en
5. Nazer, J.; Hubner, M.; Catalán, J.; Cifuentes, L. Incidencia de labio leporino y paladar hendido en la Maternidad del Hospital Clínico de la Universidad de
Chile y en las maternidades chilenas participantes en el Estudio Colaborativo Latino Americano de Malformaciones Congénitas (ECLAMC) período 1991-1999.
Rev. méd. Chile.[en línea] 2001;129 (3) [Fecha de acceso: 30 de octubre de 2012] Disponible en: http://www.scielo.cl/scielo.php?script=sci_arttext&pid=S0034-
98872001000300008-&lng=es&nrm=iso&tlng=es
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9. Johnson, N.; Sandy, J. Prenatal Diagnosis of Cleft Lip and Palate. Cleft Palate–Craniofac J 2003; 40 (2): 186-9
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11. Byrnes, A.; Berk,N.; Cooper, M. Marazita, M. Parental Evaluation of Informing Interviews for Cleft Lip and/or Palate. PEDIATRICS 2003; 112 (2): 308-
12. Campillay, P.; Delgado, S.; Brescovici, S. Evaluation of feeding in children with cleft lip and/or palate assistedin a hos-Orientación inicial, calidad de consejería y forma de alimentación en niños fsurados capital of Porto Alegre Rev. CEFAC São Paulo [en línea] 2010; 12 (2). [Fecha de acceso: 30 de octubre de 2012] Disponible en: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1516-18462010000200012
13. Zarate, Y.; Martin, L.; Hopkin, R.; Bender, P.; Zhang, X.; Saal, H. Evaluation of Growth in Patients With Isolated CleftLip and/or Cleft Palate. PEDIATRICS
[en línea] 2010; 125,(3). [Fecha de acceso: 30 de octubre de 2012]. Disponible en: http://pediatrics.aappublications.org/content/125/3/e543.long
14. Wyszynski, D.; Wu, T. Prenatal and Perinatal Factors Associated With Isolated Oral Clefting. Cleft Palate–Craniofac J 2002; 39 (33): 370-5
15. Grosen, D.; ,Chevrier, C.; Skytthe, A.; Bille, C.; Mølsted, K.; Sivertsen, A.; Murray, J.; Christensen, K. A cohort study of recurrence patterns among more than 54,000 relatives of oral cleft cases in Denmark: support for the multifactorial threshold model of inheritance. J Med Genet.2010;47(3): 162–168.
16. Da Silva , G.; Costa, B.; Gomide, M. ; Teixeiradas, L. Breast-Feeding and Sugar Intake in Babies With Cleft Lip and Palate. Cleft Palate–Craniofac J 2003; 40 (1):
84-7
17. Prescott, N.; Malcom, S. Folate and the Face: Evaluating the Evidence for the Influence of Folate Genes on Craniofacial Development. Cleft Palate–Craniofacial
Journal, 2002; 39 (3): 327-Appl Oral Sci.[en línea] 2012;20(1):9-15. [fecha de acceso: 30 de octubre de 2012] Disponible en: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1678-77572012000100003-&lng=en&nrm=iso&tlng=en
2. Global strategies to reduce the health-care burden of craniofacial anomalies. Report of WHO meetings on International. Collaborative Research on Craniofacial Anomalies. Geneva, Switzerland, 5-8 November 2000. Park City, Utah, USA, 24-26 May 2001
3. Nazer, J.; Ramírez, M.; Cifuentes, L.38 Años de vigilancia epidemiológica de labio leporino y paladar hendido en la maternidad del Hospital Clínico de la Universidad de Chile. Rev Med Chile 2010; 138: 567-572
4. Freitas, J.; Neves. L.; Almeida, A.; Garib, D.; Trindade-Suedam, I.; Yaedú, R.; Lauris, R.; Soares, s.; Oliveira, T.; Pinto, J. Rehabilitative treatment of cleft lip and
palate: experience of the Hospital for Rehabilitation of Craniofacial Anomalies/USP HRAC/USP) – Part 1: overall aspects. J 1. Global registry and data base on craniofacial anomalies. Report of a WHO Registry Meeting on Craniofacial Anomalies. December 2001
2. Global strategies to reduce the health-care burden of craniofacial anomalies. Report of WHO meetings on International. Collaborative Research on Craniofacial Anomalies. Geneva, Switzerland, 5-8 November 2000. Park City, Utah, USA, 24-26 May 2001
3. Nazer, J.; Ramírez, M.; Cifuentes, L. 38 Años de vigilancia epidemiológica de labio leporino y paladar hendido en la maternidad del Hospital Clínico de la Universidad de Chile. Rev Med Chile 2010;138: 567-572
4. Freitas, J.; Neves. L.; Almeida, A.; Garib, D.; Trindade-Suedam, I.; Yaedú, R.; Lauris, R.; Soares, s.; Oliveira, T.; Pinto, J. Rehabilitative treatment of cleft lip and
palate: experience of the Hospital for Rehabilitation of Craniofacial Anomalies/USP (HRAC/USP) – Part 1: overall aspects. J Appl Oral Sci.[en línea] 2012;20(1):9-15.
[fecha de acceso: 30 de octubre de 2012] Disponible en: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1678- 77552012000100003 -&lng=en&nrm=iso&tlng=en
5. Nazer, J.; Hubner, M.; Catalán, J.; Cifuentes, L. Incidencia de labio leporino y paladar hendido en la Maternidad del Hospital Clínico de la Universidad de
Chile y en las maternidades chilenas participantes en el Estudio Colaborativo Latino Americano de Malformaciones Congénitas (ECLAMC) período 1991-1999.
Rev. méd. Chile.[en línea] 2001;129 (3) [Fecha de acceso: 30 de octubre de 2012] Disponible en: http://www.scielo.cl/scielo.php?script=sci_arttext&pid=S0034-
98872001000300008-&lng=es&nrm=iso&tlng=es
6. MINSAL, Guía Clínica Fisura Labiopalatina; 2009
7. Rey-Bellet, C.; Hohlfeld, J. Prenatal diagnosis of facial clefts: evaluation of aspecialised counselling. Swiss Med Wkly 2004;134: 640–644
8. Kuttenberger, J.; Polska, N. Initial counselling for cleft lip palate: Parents’ evaluation, needs and expectations. Int. J Oral Maxillofac. Surg. 2010; 39: 214–220
9. Johnson, N.; Sandy, J. Prenatal Diagnosis of Cleft Lip and Palate. Cleft Palate–Craniofac J 2003; 40 (2): 186-9
10. Bocian. ME, Kaback. MM. Crisis counseling: the newborn infant with a chromosomal anomaly. Pediatr Clin North Am. 1978;25:643–650
11. Byrnes, A.; Berk,N.; Cooper, M. Marazita, M. Parental Evaluation of Informing Interviews for Cleft Lip and/or Palate. PEDIATRICS 2003; 112 (2): 308-
12. Campillay, P.; Delgado, S.; Brescovici, S. Evaluation of feeding in children with cleft lip and/or palate assistedin a hos-Orientación inicial, calidad de consejería y forma de alimentación en niños fsurados capital of Porto Alegre Rev. CEFAC São Paulo [en línea] 2010; 12 (2). [Fecha de acceso: 30 de octubre de 2012] Disponible en: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1516-18462010000200012
13. Zarate, Y.; Martin, L.; Hopkin, R.; Bender, P.; Zhang, X.; Saal, H. Evaluation of Growth in Patients With Isolated CleftLip and/or Cleft Palate. PEDIATRICS
[en línea] 2010; 125,(3). [Fecha de acceso: 30 de octubre de 2012]. Disponible en: http://pediatrics.aappublications.org/content/125/3/e543.long
14. Wyszynski, D.; Wu, T. Prenatal and Perinatal Factors Associated With Isolated Oral Clefting. Cleft Palate–Craniofac J 2002; 39 (33): 370-5
15. Grosen, D.; ,Chevrier, C.; Skytthe, A.; Bille, C.; Mølsted, K.; Sivertsen, A.; Murray, J.; Christensen, K. A cohort study of recurrence patterns among more than 54,000 relatives of oral cleft cases in Denmark: support for the multifactorial threshold model of inheritance. J Med Genet.2010;47(3): 162–168.
16. Da Silva , G.; Costa, B.; Gomide, M. ; Teixeiradas, L. Breast-Feeding and Sugar Intake in Babies With Cleft Lip and Palate. Cleft Palate–Craniofac J 2003; 40 (1):
84-7
17. Prescott, N.; Malcom, S. Folate and the Face: Evaluating the Evidence for the Influence of Folate Genes on Craniofacial Development. Cleft Palate–Craniofacial
Journal, 2002; 39 (3): 327-Appl Oral Sci.[en línea] 2012;20(1):9-15. [fecha de acceso: 30 de octubre de 2012] Disponible en: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1678-77572012000100003-&lng=en&nrm=iso&tlng=en